Tuesday, February 28, 2012

The Tide is Turning!

Finally I am getting better. The swelling and nodules are almost completely gone. There is still some slight discomfort in my ankles, but I think things are getting back to my normal. :)

I don't wish EN onto anyone. It was so excruciating and uncomfortable.

Friday, February 3, 2012

Terrible Cardiologist

I have a new doctor of shame to put on my list. She actually outdid the doctor from MedExpress who told me I needed to get a job and that my heart acted up because I needed to do something with my life...LOL If you haven't read that whole story, then be sure to here.

So I went to this doctor as an emergency appointment scheduled by my PCP. I was supposed to have rheumatic fever ruled out and then that was that. Well everything but that happened and I was soo upset I just started crying in the car and also later on at a store. I have never ever cried like that in public. It was a full sobbing and the people there probably thought I was crazy.

This doctor, Dr. Sch****off was the biggest most condescending bitch I have ever seen.

This doctor is a fake nice. Very condescending. She treats you like an idiot and talks down to you as if you were a child. She will throw in little personal attacks in between questions. She doesn't like if you ask questions. She doesn't like if you know about your health problems and have input in your care. She wants you to be stupid, obedient, only listens and worships her. Those of you who have been reading my blog for years know that I refuse to worship doctors. They are normal human beings and don't deserve that sort of treatment.

She may very well find this post and I would say all of this to her face. I had to control myself as to not walk out during the appointment. It was one attack after another and all she cared about was my POTS. I tried to explain that wasn't why I was here and she did not care. It was like I was her new pet project. "Oh a new POTSY" for her to experiment on with medications. Screw that. I will never be seeing this doctor ever again.

During the appointment, she changed her mind about what was causing the leg edema. She also manhandled my legs after I told her to be gentle, which really pissed me off.

First the edema was POTS. Then after I told her it is not seen in POTS she said it was Addison's. After I explained away that, then she said it was the dose of steroids I am taking. I told her that I take the same amount of cortisol that her own body produces on a daily basis, so that is not possible. Then it was the NSAID, but I told her I had not been taking it until after the swelling started.

She tried to blame the leg edema on every single thing possible, but when I gave her information to prove otherwise, she would just move on to another scapegoat.

No EKG was run at all. She listened to my heart for a few seconds and that was it. "I don't hear any rub, so it is not rheumatic fever". If it were any other doctor, I might have believed them, but not from this lady.

I've wasted enough energy on this lady for a lifetime. I won't be getting the echo done there and will just use her for the blood work she ordered and never see her again.

Wednesday, February 1, 2012

Erythema Nodosum: The Journey Continues

Here's the latest pictures of my feet. Check out the swelling! The picture on the left is from 3-4 days ago. The one on the right is from this morning.I called the rheumy and they seemed mad at me because I wasn't taking the NSAID. /sigh so I took it last night and today just to prove to them that the swelling is far beyond just some swelling on the nodules. I actually have full leg edema. I have gained 6 pounds in the past few days from this!

I got all of the labs back and it is quite interesting! I am definitely a weird one and I actually find it hilarious. Labs don't add up to a connective tissue disorder at all. The one thing that I keep coming back to Rheumatic fever and the PCP and her assistant agreed. They are sending me off to a cardiologist tomorrow. She would have had me seen today but I couldn't get in. I guess they will be checking my heart to see if anything shows up. At this point, even if not, I think I want to try some antibiotics and see what happens. I'll be sure to load up on the probiotics of course. 

I also have no idea how the hell my CRP and Sed Rate is normal. I am soo inflamed it is not even funny.

ANA Positive 1:320 Speckled 
SED Rate 10 (0-20)
CRP 0.1 (0.0-0.7)
ASO 182 (0-168) HIGH This is the strep infection titers, so I definitely had strep in December.
RA <15.0 (0-30) Negative
DNA AB Double 1 (<4) Negative
SM Antibody <1.0 (<1.0) Negative
RNP Antibody <1.0 (<1.0) Negative

C3 Complement 122 (90-180) Normal
C4 Complement 33 (16-47) Normal
CH50 Complement  >60 (11-60) HIGH  This is low in SLE, Sjogren's etc, so I think I've ruled those out with this result. Can be high in rheumatic fever! Not many conditions make this one high.

Sjogren's Antibodies:
SS-A/Ro AB <1.00 (<1.0) Negative
SS-B/La AB <1.00 (<1.0) Negative
Histone antibodies 1.3 (1.0-1.5=Weak Positive)

Chlamydia Antibodies:
C Pneumon IGM, IGG, IGA  All Negative
C Trachomat IGM, IGG, IGA All Negative
C Psittaci IGM, IGG, IGA All Negative

Mycoplasma Antibodies:
Mycoplasma IGG <0.90 Negative
Mycoplasma IGM 176 (<770) Negative

EBV antibodies: These are always high for me because I had EBV when I was 16.
EBV Capsid IGG 3.76 Positive
EBV Nuclear  IGG 2.80 Positive
EBV Capsid IGM <0.91 Negative

Acute rheumatic fever can account for both the high ANA and the high CH50. Also I posted on Jan 22, that was getting terrible chest pains and PVC's. I told the PCP this and she said I just have so much going on, that I absolutely need to see the specialists. Wow I couldn't agree with her more. Wish me luck tomorrow at the cardiologists.