Wednesday, July 28, 2010

As Suspected...

As I kind of guessed, I begin taking vitamins and the heart palpitations start. Why? This makes no sense to me at all. It's not like I'm taking weird things. I added P-5-P (B6), biotin and B2. How is any of that weird!! The other supplements I've taken that have given me heart palps includes l-carnitine and CoQ10...Once again, why?

I don't know what to do about it. I'm thinking this time to just fight through it rather than stopping. I know the weird beats aren't threatening as they've been captured on an EKG before.

We'll see how this goes. I think it has something to do with my breathing and sinus arrhythmia. I believe the PVC's are happening as I inhale or after I exhale.

On a completely different topic. I had terrible mid-cycle pain this month. Last night I was in agonizing pain.

Monday, July 26, 2010

Labs Drawn

I had to make an appointment with the nearby hospital to get my labs done. First they had to order in the perchloric acid needed for the one test (pyruvic acid). This is a reagent that Labcorp doesn't even carry since there is a risk of explosion if it's not handled properly. haha This reagent must be chilled before applied to my blood, so it had to be refrigerated at least 2 hours before I came in. Hopefully everything was done right. It's the same hospital that did my NutrEval test and that worked out well. Thankfully my veins cooperated really well. Man I could not believe it! That lady hit my vein and the blood just came pouring out hahaha I filled up all the vials in no time and without a tourniquet (except for the initial puncture).

My sleep schedule has been off lately. I think it's because I feel so awful during the day, so I tend to want to stay up later and later since it's usually cooler at night thus I feel better...

Now I can start taking supplements again to see what happens. Why do I have this feeling that I'm going to feel like hell this week? lol

I'll be sure to post my results of the tests when I get them. I have no idea how long that might be...Most of the labs are done at the hospital from what I was understanding, so it shouldn't be too long.

Wednesday, July 21, 2010

Woohoo! My hormone doc ordered Mito labs!

My hormone doctor has agreed to order mitochondrial tests for me. The mitchondrial doctor I talked to on the phone a few weeks ago gave me a few tests I could have done to see if this issomething I should pursue further. She did warn me though that even if all of these tests come back normal, it doesn't mean I don't have a problem....haha She just said that if these DO come back high, then we know without any doubt there's an issue. If that is the case, then I'll need to figure out a way to get my butt to Atlanta, GA...One thing at a time...

I just gotta call around and see what hospitals even do them. The one has special handling, so I can't just walk into Labcorp or Quest and get it done.

Pyruvate (Pyruvic acid)
Lactate (Lactic Acid)
Creatinine Phosphokinase (CPK or CK)

Then I added a few of my own to just see what's happening:

Serum Copper

I also have to call the insurance company to see if any of these ARE NOT covered...

Monday, July 19, 2010

Still Nothing From Cleveland Clinic

This really is just unbelievable to me.

I called on Thursday and got the secretary. I thought, "oh good" just the person that I've been playing phone tag with. Well sort of. To play tag you need the other person to try calling YOU back, which wasn't happening. I told her that I was trying to be as patient as one can be, but I've been waiting and calling for the past 6 weeks asking WHEN I'd get my report. 5 weeks ago I was told it would be finalized the next day and then sent out probably over the weekend. Now I call and I'm told the same thing each and every week. I want an answer NOW as to when my report will be in my hands...

She looks me up in the system. " guess there must have been some kind of oversight. I don't know why your report wasn't finalized". I told her that I've been told that same thing for the past 4 weeks and nothing has been done about it. "I will have the nurse call you when it is finalized". Okay so when should I expect the report to be in my hands, so that I know when to call and complain again. "I don't know" Well here it is Monday and no report, no phone call. NOTHING. What in the HELL does one have to do to get a damn report from Cleveland Clinic. This is not acceptable.

I hate to burn bridges, but I don't think I ever want to go back there. Just awful.

So...tomorrow I am calling again. I hope I get the secretary, so I can tell her that whatever it is they are doing to get the report finalized ISN'T working. I want my chart put ON TOP of the pile and it stay there until the doctor signs off on it. Period. If this doesn't work, then I'll have to call the cleveland clinic ombudsman to step in for me.

Monday, July 12, 2010

Still Not Doing Well

I was really hoping to see some improvement, but I am really bad...again. I felt decent for like 3 days as far as mood goes. But my heart has just been terrible.

I made myself go to the park today to take a short walk. My heart rate was like 150 as we were walking around, but I just made myself continue on. Suddenly it felt like someone was pushing on my throat and I told my husband I needed to sit down like NOW. We made our way to a picnic table and my HR would not go down even while sitting. I laid down on the table and immediately my heart rate went down to 70. /sigh

I felt completely out of my mind like I was watching myself watch myself.

Cleveland Clinic can kiss my ass. The autonomic department is incompetent and tomorrow they will be getting a very mean call from me. I have had enough of waiting around like a chicken with my head cut off. I want some freakin' answers as to where my report is at. They never bothered to call me back last week and now the bitch has to come out to get anything done. I'm going to tell the woman that I want a DATE that my report will be in my hands. Every single day after that report isn't in my hands, I will be calling them. Every single day until it IS in my hand.

My eye floaters/bright things are all back, so this has to be related to me feeling terrible.