Here's an Update

It's been really long since I last post because I've been doing terrible. I feel like crap emotionally. I feel like crap physically. I cannot leave my house anymore because my heart rates are through the roof again. I've stopped florinef to see what would happen and I can already tell I'm not wasting so much potassium anymore. At one point I was taking up to 120 MEQ's of potassium a day just to keep myself from having chest pains and muscle cramps. Now I'm taking 20-40 MEQ's a day just to keep my levels up. I plan on started back on the florinef at 1/2 tab to just start over again. Maybe I overshot my correct dosage. I may be looking into the bio-identical aldosterone available from Canada.

This summer went from being incredible (planting flowers, taking walks, tanning) to just downright miserable. Now I am having low thyroid symptoms in addition to everything else. I look puffy. My eyes are so baggy, I look like I haven't slept for days. The weight gain is out of control. I need to go pants shopping again!

Since my heart rates have now reached into the 170-180's upon standing, I am seeing a cardiologist on Aug. 28 that specifically deals with POTS (Postural orthostatic tachycardia syndrome). A new echocardiogram I had done last week shows that I no longer have mitral valve prolapse, so that's pretty interesting. Nothing is physically wrong with the heart. The doctor can't blame it on that like the technician was telling me. "Oh this is probably all from mitral valve prolapse". I just nodded my head. Right!! I do not know ANYONE who's heart rate almost hits 200 when they stand. Give me a break. If everyone with MVP had this, then it wouldn't be so benign.

On Monday I am getting a Holter monitor placed on me for 24 hours and I plan on doing all the activities that make me feel like I'm going to die. I'm going to walk down to my flower bed and pull weeds. And I'll probably do the dishes and laundry. Gosh darnit, I hope it's a terrible heart day because I need this cardiologist to see what hell I go through on a daily basis. I cannot take this shit anymore.

My husband has been feeling sick, so that's not making things any better either. 2 sick people in a relationship causes a lot of tension especially when we are both too sick to keep the house up and running. Work has been stressful and nothing seems to be going right. This hormone replacement bullshit has not been going good for him either. He now has the rapid heart rate upon standing and I'm scared for him. What if florinef doesn't work for him either? Then what?

Guess we're moving somewhere cold.

Mineral Deficiencies Exaggerated While Detoxing

My mineral deficiencies are coming back full force. I guess it must be because the mercury is pulling good minerals out with it.

My muscles are trembling. If I sit my leg up, it beings to shake erratically. It looks like Parkinson's...So I am betting it is my potassium levels. They are ALWAYS low. When I was 18, I went to the ER for lower back pain. Well I found out I had a possible kidney stone and kidney infection. While I was there they did a bunch of blood work and my potassium was very low. I'll never forget what the nurse told me, "Your potassium levels are about as low as we'd expect a 90 year olds to be." I was shocked and asked her what type of symptoms this would cause and she said weakness in the muscles and tremors. I thought to myself...wow I do have that sometimes! I was a young PUNK though with a terrible diet and sleeping schedule. Working 40 hours a week and school for 20 hours a week. I was an insanely busy person.

My potassium has been low forever. As long as I can remember when I've had blood work done. The last time I had a BMP (basic metabolic panel) drawn was 2 months ago and once again, low potassium serum of 3.4 This week I've been doing more research and it keeps coming back to my pituitary. Maybe I can nudge Dr. Goldstein to do a CMP (complete metabolic panel) to see what else is going on with my blood cell count. My white blood cells have been chronically low for about 3 years. I think if I mention the fact I'm using DMSA, he'll agree to it.

Anyway back to the potassium. Low potassium can be a sign of secondary-adrenal insufficiency. I actually read this on page 119 of Dr. Cutler's book, Amalgam Illness: Diagnosis and Treatment. Well I started this blog with the notion that I had primary adrenal insufficiency. This week I'm starting to wonder if it is secondary caused by my under performing pituitary. If my pituitary is not telling my adrenals to make cortisol what other organs and glands are suffering?

We know it isn't making ADH (antidiuretic hormone), which is why I was diagnosed with Diabetes Insipidus. Your pituitary is one of the powerhouses of your body's hormone.

The Anterior side of the pituitary controls ACTH (adrenals), TSH(thyroid), PRL(lactation while pregnant), GH (growth hormone, endoriphins, FSH(reproductive system), and LH(triggers ovulation in women).
The Posterior side of the pituitary controls, ADH(tells your body to conserver water) and Oxytocin(allows for body to begin labor in childbirth).

I am definitely oversimpling but it gives you an idea how important it is. Mine is FULL of mercury, which is what's screwing it up. I wonder how many other people with weird idiopathic pituitary problems are just mercury poisoned...