Showing posts with label pituitary. Show all posts
Showing posts with label pituitary. Show all posts

Monday, March 2, 2009

Weight Gain: I can't take it

In the past few months, I've been dealing with some weight gain. It is very strange though. I go through cycles where I lose a ton of weight for no reason. Then the cycle switches and every little thing I eat goes right to my butt and hips. Meanwhile my upper body looks emaciated and sickly with my ribs jutting out in my back. My body is very fat and puffing, even though I'm thin. There is a lot of fat where muscle used to be. I don't know what has caused this to happen, but my toned legs have become soft. My stomach used to be very toned is soft too.

My arms have nothing left on them and anytime I get my blood pressure taken or blood work done, that's what everyone talks about. "You sure do have small arms". Thanks jackass! I wasn't already self-conscious about it.

It's this cycle that gets me in trouble because I haven't been able to figure it out. My thyroid antibodies were normal and nothing in my diet changes. There is no reason for these cycles to occur, but they do. I have to keep several pants sizes in my house just so I have clothes for each cycle. Weird...I know. The pants I buy to replace the ones I have on, will probably only last me a few weeks. Then I'll have to buy new bigger ones. That's how it's been these past few months. As soon as I wear in the pants, I need new ones because I wake up one day and they no longer fit.

I've gone from wearing a size 1/2 comfortably to being unable to wear my new size 5/6 jeans. I'm going to have to go up to a size 7/8. I haven't been this size for at least 5 years and it is making it very nervous. Eight years ago I suffered from anorexia and almost killed myself from it. I abused Stacker 3's and probably should have died a few times, but somehow I made it through all of that hell. There were some nights, where I didn't think I'd wake up. I'd write goodbye letters to all of my friends.

I went from 142# down to 105# in a few weeks time and kept it there for months. For the first time in my life though, I actually enjoyed clothes shopping. I actually enjoyed going to the beach. I actually enjoyed wearing a pair of shorts. It was absolutely amazing. Too bad though I was dying inside.

I went to the doctor and got "help", which consisted of pills. I had to deal with my psychological problems myself because I didn't want any of this on my record. I was "cured", but it took a lot of time and discipline. My family did not support me through this whatsoever. Thank God, I went off of the pills and didn't suffer from any withdrawal symptoms.

About 2 years ago, I decided I wanted to start eating healthier. We ditched all of the packaged crap in our house and really get back to eating real, whole foods. I went from 125 to 117 in a few weeks time and felt fantastic. I was thinner than when I was anorexic and I did all of this eating 3 meals a day. I was so happy for myself and knew this was the size I was meant to be.

Now I am only 122#, but nothing is fitting me. I have no idea what is going on. I only gained about 5 pounds from when I was wearing a size 2, but apparently these pounds are all in my lower body. Part of me thinks it has to do with my pituitary, but I have no idea.

Unfortunately I just wait and see what happens. Will a new weight loss cycle kick in soon? Or will I continue to put on weight?

Having nearly undetectable TSH (with low frees) might have something to do with it...

Tuesday, January 20, 2009

Adrenals (& Pituitary) Aren't Doing Their Job

This week I have some stressful things going on. I have to meet with some attorneys. YUCK. Anyway, I decided it was more important to feel better for these events than to get my blood work done, so I started on some cortef yesterday. You have to be off of cortef for 2 weeks prior to testing, so that pushes things back.

Yesterday, I took 10mg in the morning. Didn't really feel much of anything. Then at noon, I took another 5mg. Eh, it was Ok. Nothing spectacular. Then another 5mg at 4pm. That is when I finally felt it working. We went to the mall to find an outfit for these meetings. By the time we got out of the mall, I felt like I was dying. I drank a 20 ounce bottle of water in 5 minutes because I was DYING of thirst. The woman checking us out looked at me really strange as I was trying to drink the water as fast as possible! I could tell she was thinking...wtf is wrong with this girl. My mind was not in a right state either.

My mouth was making that tacky sound. Felt like I had eaten 2 jars of peanut butter! haha Now since I have DI, I know what thirsty can feel like, but this was on a completely different level. In addition to that, I felt like I wanted to just cry and fall down. I was so irritated and angry, but I had no idea why. I assume that the cortef completely wore off and I was experience low cortisol. It appears my suspicions were correct!

Here's a list of symptoms found on the website, stopthethyroidmadness.com This website talks about adrenal and thyroid problems.

Items in bold, I am currently experiencing.
  • continuing hypo symptoms with a high free T3, or high amount of Armour
  • shaky hands; shakiness
  • diarrhea
  • bad palps
  • feeling of panic
  • weakness
  • inability to handle stress
  • inability to handle interactions with others
  • inability to focus
  • rage or sudden angry outbursts
  • emotionally hyper sensitive
  • overreacting
  • highly defensive
  • feeling paranoid
  • exacerbated reactions to daily stress
  • no patience
  • easily irritated
  • mild to severe hypoglycemic episodes
  • taking days to recover from even minor stress
  • taking days to recover from a dental visit
  • clumsy (drop things, bump into things)
  • suddenly feel extremely hungry
  • dull cloud-filled head (happens when this patient is due for a next cortisol dose)
  • light headedness
  • dizziness
  • coffee putting patient to sleep
  • almost passing out every time patient gets up
  • dark circles under my eyes
  • waking up in the middle of the night for several hours
  • frequent urination
  • difficulty falling asleep
  • extreme fatigue
I HAVE to get through this week in 1 piece and taking cortef is the ONLY way it's going to happen. Then once this is done, I have another deadline I need to meet. It's long overdue too.

Here's something you didn't know about me. Driving is so stressful for me that I don't even like to do it anymore. My husband practically drives me everywhere and I know it annoys him. Last week I drove myself to voice lessons and the whole time I was a complete wreck (shhhh don't tell my husband this--I told him I was OK). My hands were shaking and my thirst was OUT of control. Nothing would quench my thirst (even though I took my DDAVP). Today, I drove myself to one of the attorney meetings and I was actually calm. I took 10mg cortef in the morning and then right before I left another 5mg. That last me half way through the meeting. Popped another 2.5mg when she went to make a phone call and I needed more when I got out.

Now I still feel really wiped out from the meeting, but I noticed considerable difference in my driving. I was more focused and wasn't scared. Normally I am literally scared to death driving...This only happened about a year ago! I used to drive all over the place. I drove myself to New York 6 years ago to see a friend.

What the hell has happened to me in this time frame?

I'm telling you now, Thursday I'm going to be a wreck. I'm already a wreck. My body isn't working right. Sometimes I think since I don't work out of the house anymore (I quit because of my health) that I forget how bad I am. I go out on my own so infrequently, that I don't put my body in a stressful environment. On a normal day for me, stress is at a minimum.

This is all making sense to me now. I never thought I had a stressful life. In fact, I need to be more grateful for how easy I have it. If my pituitary isn't telling my body to make cortisol at an appropriate level, that's why my adrenal fatigue isn't necessarily related to bad stress. Any stress--whether good or bad--will cause my body to immediately fail. This week is certainly putting things into perspective. I'll need to talk about these symptoms and problems when coping with stress to the endo.

If it weren't for the cortef, I probably would have collapsed today. Once I figure out all of my problems, I'm going to be a large medical alert bracelet put all of my problems on it. haha

Saturday, January 17, 2009

Blood Work Before Seeing the Endo

I jumped on a hypopituitary forum and asked what type of blood tests I should have done BEFORE seeing an endo.

Here is what I was told to get:

Cortisol, AM
ACTH, AM
Aldosterone
Renin
Sodium
Potassium
LH (Luteinizing Hormone)
FSH (Follicle-Stimulating Hormone)
Prolactin
IGF-1 (Insulin-like growth factor)
GH (Growth Hormone)
DHEA-S
Saliva Cortisol Test (Redo)

These tests will tell me whether or not my adrenal fatigue is caused by a pituitary problem. It will also tell me whether or not I have a deficiency in the other pituitary hormones. This way I can walk into that endo's office with a good understanding of what is and what is not occurring. He can't give me the run around.

I've got a headache for some reason. Going to lie down for a bit.

Tuesday, January 6, 2009

Yesterday's Doctor's Visit

I saw Dr. Goldstein yesterday and I will need to call an endo to get some of these fancy tests done. In order to check whether this is my pituitary causing the slight hypothyroidism, I'll need a TRH stimulation test which Goldstein does not do. I found an endo literally right down the road from me that specializes in pituitary disorders. He sounds about as good as any other I found online.

Part of me just wants to "forget" that I have diabetes insipidus, but that might not work to my advantage. If I already have a pituitary problem he would be more willing to check my pituitary hormones. Dr. Goldstein told me that he will take me off of DDAVP for a specific time frame and redo EVERYTHING including the water deprivation test. UGH...NO! I can't wait to have heart palpitations and dizziness upon standing. The water deprivation test is pure hell. Dr. Goldstein was saying that if my diabetes insipidus isn't full blown, he will probably take me off of the DDAVP. WTF?! I already know mine isn't full blown because some days my pituitary works and other days it doesn't. Let's hope it is a really bad day for me when I go in for these tests. Some days even with my medicine, my urine is very dilute (clear). Sorry that might have been a little too much info!

UPDATE: I called the endo and the soonest they can see me is March 31st. In the meantime, I will continue to chelate and do what I've been doing.

I recently joined the Natural thyroid hormone yahoo group. I doubt I'll post much on it, but it is nice to see others talk about their hypo problems. You must join to see any messages.

Friday, December 12, 2008

Getting Thyroid Labs Redone

I spoke to Dr. Goldstein today about my ridiculously low TSH! He was also in agreement with me that something isn't right.

Back in the end of August, my TSH was 1.077. The ONLY thing that has changed since August is that I have had my amalgams out and started DMSA. My goodness I hope DMSA hasn't totally ruined my thyroid. My blood count recovered, so that is good. Phew...

I am getting EVERYTHING re-checked. T3, T4, TSH, antibodies etc. A complete work up of my thyroid rather than bits and pieces of information. Having all of this done will give Goldstein a complete picture. The PCP wanted me to get an ultrasound done because she was concerned that I have a goitre. A regular ultrasound is fine, but she wanted me to have a radioactive uptake test too. NO way in hell I am having one of those done. It destroys your thyroid. I told Goldstein about this and he also agrees with me on this. This is why I love this doctor. He has common sense. He told me to NEVER have one of those done because iodine isn't only found in the thyroid. It is in the breasts and basically part of the entire endocrine system. It isn't safe whatsoever. 10 points for Dr. Goldstein there. YAY!

Now I wait on the blood work paper from Dr. Goldstein to get it all done. If it still comes back low, then we can see what is going on from there. He said that my T4 doesn't match the low TSH at all. If I had true hyper, then my T4 would be through the roof. If I had a secondary hypothyroidism (pituitary problem) then my T4 would be low. He kind of laughed and said he had no idea what was up. I'm one of his most complex patients. He has told me this over and over. That's when I suggested that perhaps the lab result was a fluke or misinterpreted. Maybe someone messed up a decimal point?

The PCP has now completely dismissed the swollen lymph nodes. She said that they don't exist now that she found the low TSH (I am not making this up). Rather than cervical adenopathy, she feels it is a goitre. If my thyroid is so enlarged that it is reaching the collar bone area, then I am in serious trouble. You can't see the thyroid at all when looking at me. She also shrugged off the enlarged lymph node in my groin...I think that my time with this doctor is over. It took 5 days to finally get an answer and she didn't even respond to the swollen lymph node in the groin. They NEVER faxed me the results. If it wasn't for Goldstein's office, I still wouldn't have them! This office had their chance and it is time to move on. I'm not gonna burn bridges, but I'm just sort of irritated how they have handled everything.

I really want to get this lymph node in my groin checked, but have no idea where to go. Really concerns me how huge it is...

I stopped the iodine as soon as the rashes started, so I'm not sure what to do at the moment. I'm gonna wait to start back up on it until I get these new labs done. Then we can get a clearer picture of what is happening. All of this may be my pituitary finally sputtering out. I have been taking my medication for DI, so it hasn't been working recently.

Tonight I am drinking a beer (yep with elevated liver enzymes HAHA) to see if I can even do it. Woot Guiness! It has been at least 8 months since my last one and I couldn't even finish it. So far so good. I'm about 5 sips in and I have no pain or weird feelings. This is an experiment. :-) What a good experiment as long as the lymph node pain doesn't start...

Thursday, December 11, 2008

New Bloodwork Results---Truly Unbelievable

I am sort of at a loss for words with these new blood work results. Something is just not right with me, but apparently no one knows...Right now I am pretty fuming, so please excuse any frustration in this post.

I actually got these results from Goldstein (I had the lab send them to him as well) because the other doctor's office I went to is NOT cooperating with me. I contacted them on Monday with no call back. I called them, Tuesday and Wednesday too. Finally someone called me, but the message was NOT relayed to the doctor (about the lymph nodes in my groin) and my blood work was NEVER faxed to me. What is with doctor offices these days? My goodness, if the doctor had taken 1 look at my results, I think she would have called.

As a reminder I had the following tests done:
CBC (no differential)
Comprehensive Metabolic Panel (CMP)
T4
TSH
CMV IgG AB (Titres)
Sed Rate (ESR)

CBC-All of my blood counts were normal...Wow what an improvement from 2 weeks ago where my white blood cell counts were 3,800. They were 4,900 this time. Unbelievable! There is no differential, so I do not know what my neutrophils or eosinophils are this time around.

CMP-Showed elevated liver enzymes at 60. Specifically the ALT. Now they aren't THAT high, but what in the world is causing this? I use no OTC pain relievers and I don't drink.

T4-8.9 This is in the reference range.

TSH-This one actually made my jaw drop........ 0.01 WTF! Holy shite, I went from Goldstein saying I may have slight hypothyroidism to super crazy hyperthyroidism? Or maybe it is my pituitary? I haven't taken iodine for about 4 weeks and I was only taking 1 tab a day. Even Goldstein says this amount is completely healthy and normal to take. The people in Japan consume more iodine than this in a single day... Once again, complete loss for words. What makes NO SENSE is that my T4 is normal. In true hyperthyroidism, T4 should be elevated too. I am thinking my pituitary has finally called it quits.

CMV Titres-No active CMV which includes EBV! Yay! This made me so happy. I am at 0.91 which is 0.01 away from saying I am completely NEGATIVE for antibodies. The fact that I had EBV and it is showing this low is amazing to me.

Potassium- Low at 3.5 What the hell is wrong with me. Why is my potassium always low...damnit I have made it a mission to get this higher too with NO luck whatsoever.

Sed Rate- Normal at 3. Range is 0-20.


Now I have no idea what is going on with me. /sigh These results truly make me even more frustrated and confused as to what's up. I may call Goldstein tomorrow to see if he'll look at these for me. The thyroid numbers are totally jacked. I may need to start taking Armour at this rate.

Friday, October 31, 2008

Mineral Deficiencies Exaggerated While Detoxing

My mineral deficiencies are coming back full force. I guess it must be because the mercury is pulling good minerals out with it.

My muscles are trembling. If I sit my leg up, it beings to shake erratically. It looks like Parkinson's...So I am betting it is my potassium levels. They are ALWAYS low. When I was 18, I went to the ER for lower back pain. Well I found out I had a possible kidney stone and kidney infection. While I was there they did a bunch of blood work and my potassium was very low. I'll never forget what the nurse told me, "Your potassium levels are about as low as we'd expect a 90 year olds to be." I was shocked and asked her what type of symptoms this would cause and she said weakness in the muscles and tremors. I thought to myself...wow I do have that sometimes! I was a young PUNK though with a terrible diet and sleeping schedule. Working 40 hours a week and school for 20 hours a week. I was an insanely busy person.

My potassium has been low forever. As long as I can remember when I've had blood work done. The last time I had a BMP (basic metabolic panel) drawn was 2 months ago and once again, low potassium serum of 3.4 This week I've been doing more research and it keeps coming back to my pituitary. Maybe I can nudge Dr. Goldstein to do a CMP (complete metabolic panel) to see what else is going on with my blood cell count. My white blood cells have been chronically low for about 3 years. I think if I mention the fact I'm using DMSA, he'll agree to it.

Anyway back to the potassium. Low potassium can be a sign of secondary-adrenal insufficiency. I actually read this on page 119 of Dr. Cutler's book, Amalgam Illness: Diagnosis and Treatment. Well I started this blog with the notion that I had primary adrenal insufficiency. This week I'm starting to wonder if it is secondary caused by my under performing pituitary. If my pituitary is not telling my adrenals to make cortisol what other organs and glands are suffering?

We know it isn't making ADH (antidiuretic hormone), which is why I was diagnosed with Diabetes Insipidus. Your pituitary is one of the powerhouses of your body's hormone.

The Anterior side of the pituitary controls ACTH (adrenals), TSH(thyroid), PRL(lactation while pregnant), GH (growth hormone, endoriphins, FSH(reproductive system), and LH(triggers ovulation in women).
The Posterior side of the pituitary controls, ADH(tells your body to conserver water) and Oxytocin(allows for body to begin labor in childbirth).

I am definitely oversimpling but it gives you an idea how important it is. Mine is FULL of mercury, which is what's screwing it up. I wonder how many other people with weird idiopathic pituitary problems are just mercury poisoned...