Wednesday, October 7, 2009

Got My Thyroid Labs Back

Today I got the labs back from the doctor I saw in Michigan. I have no idea what in the hell is going on with my body.

TSH 0.25 (0.40-4.50)
FT4 0.8 (0.8-1.8)
FT3 752 (230-420) Oh my goodness!
Reverse T3 19 (11-32)

Iron 65 (45-175)
Ferritin 50 (10-291)
Glucose 88 (65-99)
Insulin 14 (<17)
Potassium 4.1 (3.5-5.3) That potassium is finally coming up!

I told the doc to throw in a lipid panel because I've NEVER had one done before.
Total Cholesterol 190 (125-200)
HDL 90 (>= 46)
Triglycerides 44 (<150)
LDL-Cholesterol 91 (<130)
Chol/HDLC ratio 2.1 (<=5.0)

I had EBV at 17, but this doctor wanted to check the antibodies again.

Epstein Barr Virus Early Antigen D AB (IGG) <=0.90 (Negative)
Epstein Barr Virus VCA Antibody (IGM) <=0.90 (Negative)
Epstein Barr Virus VCA Antibody (IGG) 4.53 HIGH
Epstein Barr Virus (EBNA) Antibody (IGG) >5.00 HIGH

Interpretation: Suggestive of past EBV infection.

So...I don't know what is going on with my body. I think it's just really ticked off! On this trip I remember feeling SO tired and didn't feel hyper at all. Apparently though with this lab, I don't know when I'm hyper or hypo. That's been made pretty clear to me now.

I also got my food allergy test back....HAHA Sadly I doubt I'll be cutting back on these foods. Some of the foods that showed are absolutely ridiculous. I have no idea what I'd even eat. Here's what came back with a response.

Blueberry (low)
Broccoli (low)
Cottage Cheese (low)
Corn (low)
Egg Whites (Medium)
Egg Yolks (Very high)
Garlic (low)
Gluten (Medium)
Lemon (low)
Lettuce!! (low)
Malt (low)
Cow's Milk (Very high)
Black Pepper!! (low)
Sweet Potato (low)
White Potato (low)
Soybean (low)
Strawberry!! (Medium)
Tomato!! (Medium)
Wheat (High)
Baker's Yeast! (low)
Yogurt (Medium

I went through every single food we eat in this house and I'm getting at least 1 of these allergens at EVERY meal. I use black pepper, tomatoes, garlic and eat salads a lot. If I can't eat salad then what the heck am I supposed to do? Even some of the gluten free alternatives would be an issue because of corn. These results really just pissed me off more than anything.

Tuesday, October 6, 2009

My Eyes and Current Condition

I really need to keep up with my blog. I am sorry to all of you who are watching this.

Okay first off my eyes are bad again. I read through the last few months and I don't think I ever really updated what happened with my eyes. The Posterior Vitreous in my left eye did finally detach itself from the retina and the right eye is "impending detachment". Now this is not as serious as a retinal detachment as it requires no surgery, but once this happens you are at VERY high risk for retinal detachment. If I hit my head really hard or lifted something very heavy, I might cause it to tear or completely detach!

I've been getting serious pain in my left eye and there are more floaters. I just had my 6th month(?) check up about 2 1/2 weeks ago and he said everything was good. Well 2 1/2 weeks ago I wasn't having these symptoms and some of the floaters at night are glowing! Yes glowing! I'm going to play it by ear or until the pain gets so bad that I just can't take it anymore. All I know is that when I look at people's faces, there is a scary looking floater that wasn't there before. I'd try to draw a picture of it, but I don't even know how to begin. The floaters have been REALLY noticable. For a while there I actually forgot about them, but they are more web-like and much darker.

Just for records sake, here are my current meds:
25mg HC
1 grain of Armour
0 Florinef
2 Bio-identical Aldosterone caps
6.25 mg of DHEA
20-40 MEQ of RX Potassium
1-2 sprays of DDAVP
Midodrine (oh my goodness)

I am so glad it is getting colder outside! YES. I can actually live for now. Today for some unknown reason was pretty bad BP/heart day which is why I took the midodrine. Sadly it didn't do anything. My BP sitting was 88/75 and my heart rate was 150...LOL I am glad that I can laugh at it now because earlier I was pretty ticked off.

My husband's health has been so poor that I haven't really been taking care of myself. lol It's funny how that happens. In some ways, he is much worse than me. It's hard having 2 sick people in the house now and I find myself "annoyed" because we both can't get stuff done around the house. There are so many things that need done right now, it's not even funny. We need to get the garaged cleared out so we can park the car in there for the winter. Just thinking about all the lifting, bending up and down makes me want to cry. I'm going to be so ill.

About a month ago we drove out to Michigan to see a new doctor for my husband. I also saw another doctor to get a 2nd opinion on everything. At this point nothing has been done because we were waiting on new blood work and a food allergy test. I have a VOV (virtual office visit) with her on October 14th. I'll get to tell her all about that lovely Tilt-table test...haha We still might have to go back out to see the OTHER doctor. /sigh

Since it's getting colder outside, I've been feeling much better. I still have bad days (like today). I might try to do a round of chelation just to see what happens to me. Since I'm on HC, I bet they go much smoother.

In addition to all this, I am trying to have more of social life. I have been catching up with some of my old friends. I realize that through all this health nightmare, I've neglected to let myself have a good time. I've been fighting to stay alive for nearly 4 years. Now that I feel a little better, I need to take advantage of this time.

Midodrine Is A Nightmare

Taking midodrine is absolutely horrific. For those of you who don't know what this drug does, it's a vasopressor and is supposed to raise your blood pressure. My Electrophysiologist (EP)wanted me to try this out for a while to see if it helped with my postural orthostatic tachycardia. Well it's some of the nastiest stuff. Within 35 minutes of taking it, I feel like bugs are crawling on my skin. My hair feels like it's going to lift off my scalp and it makes me extremely anxious and nervous. And the worst part? It doesn't work at all.

I can see why there was such a large early drop out rate in the clinical studies. I wouldn't have made it through one either.

On the 13, I go for my Tilt-Table Test. I'll be sure to let everyone know how hellish it was. I kind of hope that I pass out on the table.

Sunday, September 20, 2009

Apparently Nothing is Wrong with me

Holter Monitor came back "Normal".

Here's the full report

1. Total recording was for 23 hours 59 minute with approximately 9 minutes of deletion due to artifact. The underlying rhythm was normal sinus rhythm. PR interval was 0.14, QRS 0.06, QT Interval normal. Lower heart rate was 55, upper heart rate was 159 BPM. Normal AV conduction.
2. Rare ventricular ectopy, totally 20, All Single.
3. Rare supraventricular ectopy, totally 74, 47 were Isolated, 18 paired. There were short runs of sinus arrythmia, but no significant tachyarrythmias were present.
4. The patient had no significant ST depression or elevation.
5. The patient completed a diary and had rapid heart rate and rapid breathing at approximately 1 PM. This was associated with sinus/sinus tachycardia.

Impression:
Overall, Holter Monitor is benign showing normal sinus rhythm with multiple episodes of rapid atrial rhythm, which were associated normal sinus rhythm and sinus tachycardia. No inappropriate supraventricular tachycardia was seen.

Now the sick thing was that this was a GOOD DAY for me. 160 heart rate is about normal for me if I do normal daily activities yet it looks like during these "episodes" the heart is beating fine. I guess that's good, but I feel like shit. So now what?

I go in for a the Tilt Table Test on October 13. I've had this BULLSHIT for 7 years, so what's another 3 weeks?

In other news, my husband was in the hospital for 3 days with guess what? TACHYCARDIA! After all these tests, they have no idea. What a surprise. No one knows what causes mine either. In the past few weeks I've had a lot of weird things happen to me. I'm not exactly sure how to explain it, but I feel like a different person emotionally and spiritually. When my husband was admitted to the hospital after having an adrenal crisis, it really shook me up. I had to take control of everything and drive myself around. I haven't done that for years and I realized that I can still do all of that if I put my mind to it. I realized that I can be as independent as I want to be, but I just have to give myself a chance to do it. I dunno. I can't even explain what I feel, but whatever it was it was for the better. My anxiety is gone...completely.

Tuesday, September 1, 2009

Labs Are Back and Call From the Cardiologist

Here's my latest labs:
Meds were as followed-
0 Florinef -I quit this a few weeks ago because I was potassium wasting WAY too much. I was sick of the constant chest pains and muscle cramps.
30mg HC
2 grains of Armour
6.25mg of DHEA
DDAVP when needed
20-60 MEQ's of potassium-If I have chest pains I take more that day

Glucose 84 (65-99) This is good. I've seen it in the 90's and that was a bit concerning
Sodium 136 (135-145) This is from the low aldosterone
Potassium 3.8 (3.5-5.2) Kind of sickening that it's this low still
Chloride 102 (97-108)
Carbon Dioxide 22 (20-32)
B-12 619 (211-911) Kind of surprising it's this high

TSH 0.129 (0.45-4.500) Just 2 weeks ago my TSH was 1.6 on the same dose of Armour? Apparently my pituitary is just taking a nap right now LOL
FT3 3.3 (2.3-4.2) Before treatment I was at 3.1
FT4 1.03 (0.61-1.76) Before treatment I was at 1.29
Reverse T3 310 (90-350) WOW!
DHEA-S 137 (65-380) This was 10 hours after taking 6.25mg of DHEA

So from what I understand it looks like I have a problem converting T4 into RT3 rather than into the active T3 form. My ratio is 0.0106 and it should be 0.020. Most people would say that I need to go on a T-3 only regimen, but I don't know if my doc would be up for that. I'll have to see what he wants to do with this. I feel more hypo than before and my weight gain (even being off the florinef) is still not good. I look more puffy than ever, which I thought was the florinef. Now I'm not so sure!

I'm staying on 6.25mg of DHEA. That lab isn't that bad in my opinion after 1o hours and don't really feel any benefits at 12.5+ I start to get acne really really bad and my sex drive actually goes down. For whatever reason 6.25mg is my sweet spot as it must completely convert to testosterone.

Today I got a call from the cardiologist's office (well he's an electro physiologist) and I have a feeling that something was seen on the Holter monitor. Maybe I'm making something out of nothing, but I just saw him on Friday and he said we didn't need to do another EKG because I had one from my PCP done a few weeks back. Well his office called and told me that the doc wanted an EKG from me and to call back to schedule this...Hmm. I need to schedule the Tilt Test as well, so I'll have to ask why the sudden change in heart (heh).

Saturday, August 29, 2009

Scariest Chest Pain Ever

Yesterday I was having horrific anxiety again, which has come on since starting the Armour. I think I probably have a Reverse T3 problem and I just got some labs done to see.

I was getting ready for bed and my heart seemed a little weird. I just had this strange feeling and I felt extremely lightheaded and dizzy. So I went to lie down and my husband was talking to me. Then suddenly this intense stabbing pain hit me like a damn train. It completely took my breath away and went on for about 25 seconds. I got so scared, I started to cry and hyperventilate.

Then suddenly...gone. WTF!? I was ready to call 9-11 because it felt like a heart attack. It has me so freaked out now. It was such a sharp pain. Probably the worst pain I've ever felt in my entire life. Worse than that kidney stone I had years ago. Worse than falling off the monkey bars and having to walk home with a broken arm. It was so intense.

It was NOT one of those Precordial Catch pains. I've had those before where it hurts to breathe out the whole way. No no. This was like someone was squeezing my heart as tight as possible. I felt almost paralyzed by the pain.

Why can't stuff like this happen when I have a monitor on me? lol

Saturday, August 22, 2009

Here's an Update

It's been really long since I last post because I've been doing terrible. I feel like crap emotionally. I feel like crap physically. I cannot leave my house anymore because my heart rates are through the roof again. I've stopped florinef to see what would happen and I can already tell I'm not wasting so much potassium anymore. At one point I was taking up to 120 MEQ's of potassium a day just to keep myself from having chest pains and muscle cramps. Now I'm taking 20-40 MEQ's a day just to keep my levels up. I plan on started back on the florinef at 1/2 tab to just start over again. Maybe I overshot my correct dosage. I may be looking into the bio-identical aldosterone available from Canada.

This summer went from being incredible (planting flowers, taking walks, tanning) to just downright miserable. Now I am having low thyroid symptoms in addition to everything else. I look puffy. My eyes are so baggy, I look like I haven't slept for days. The weight gain is out of control. I need to go pants shopping again!

Since my heart rates have now reached into the 170-180's upon standing, I am seeing a cardiologist on Aug. 28 that specifically deals with POTS (Postural orthostatic tachycardia syndrome). A new echocardiogram I had done last week shows that I no longer have mitral valve prolapse, so that's pretty interesting. Nothing is physically wrong with the heart. The doctor can't blame it on that like the technician was telling me. "Oh this is probably all from mitral valve prolapse". I just nodded my head. Right!! I do not know ANYONE who's heart rate almost hits 200 when they stand. Give me a break. If everyone with MVP had this, then it wouldn't be so benign.

On Monday I am getting a Holter monitor placed on me for 24 hours and I plan on doing all the activities that make me feel like I'm going to die. I'm going to walk down to my flower bed and pull weeds. And I'll probably do the dishes and laundry. Gosh darnit, I hope it's a terrible heart day because I need this cardiologist to see what hell I go through on a daily basis. I cannot take this shit anymore.

My husband has been feeling sick, so that's not making things any better either. 2 sick people in a relationship causes a lot of tension especially when we are both too sick to keep the house up and running. Work has been stressful and nothing seems to be going right. This hormone replacement bullshit has not been going good for him either. He now has the rapid heart rate upon standing and I'm scared for him. What if florinef doesn't work for him either? Then what?

Guess we're moving somewhere cold.

Saturday, July 18, 2009

Water Deprivation Results

Before I post the results to the water test, I wanted to talk about the extreme anxiety I have been experiencing recently. It is absolutely ruining my life and it comes on suddenly without warning. I could not sleep last night because of it. I forgot to take my DDAVP and was having horrific night sweats...I really need to remember taking it. Anyway, I woke up a few times with my heart racing. I was definitely having a panic attack in the middle of the night and just decided to get up.

What's the point of going through mental torment while laying bed?

On monday I am talking with an EFT counselor to see if she can get to the bottom of all this. I'm really scared about this, so maybe I'm already stressing over talking to her about my anxiety...LOL

Glucose--84 (65-99)
Sodium--142 (135-145)
Potassium--3.4 (3.5-5.2) LOW Don't worry I'm already on RX potassium.
BUN--13 (5-26)
Creatinine--0.92 (0.57-1.00)
Chloride--103 (97-108)
Carbon Dioxide--24 (20-32)

ADH-- <0.8 (0.0-4.7) LOW
Serum Osmolality--287 (275-295) Last time I was above range on this one
Urine, Osmolality--784 (After 12 hour fluid restriction >850) LOW

At first glance the doc thought the ADH was too low, but then he said my sodium wasn't high enough. I pointed out to him that the urine osmolality for 12 hour fluid restriction was too low regardless that it concentrated at all. Yes I don't have complete, severe DI. We already knew that, but this does not rule out partial DI.

I have been taking my spray again with good results. I'm just going to take it when I feel I need it and that's that. I'll probably have to go back to Dr. Goldstein to get more refills in a few months. I'll worry about that when that comes up. I should probably make an appointment now though to see him.

Sunday, July 5, 2009

Not Something I'm Proud Of

I've gained 20 pounds since starting hormone replacement. Let me tell you this does not make me very happy...at all. I tried telling myself that it would "calm down", but I have been on an upward trend for months now and I don't see this changing anytime soon.

Since I can't tolerate Armour I have no idea what I'm supposed to do. Is this my true weight rather than the adrenal insufficient, dying weight I was before? Or is this just hypothyroid rearing its head!

This alone is making me extremely depressed and I'm probably going to have to buy new pants again. That's what the 3rd time now in 3 months? I scare the shit out of myself when I enter this zone because I see the anorexic me come back instantly. The anorexic me that caused all these health problems to begin with. I was a normal, healthy person before I went and starved myself yet here I am thinking that cutting my calories back even further is a good thing.

My heart rates have been up again. The florinef is not keeping them in check anymore, so I feel like nothing is better. Today was absolutely beautiful outside, but as soon as I stepped outside and went to look at my flowers---BAM 147 heart rate--You can't do anything when your heart is that high except gasp for air and look for the nearest place to sit down.

I am pissed off and not in a good mood.

Monday, June 29, 2009

Random Stuff


Here's a picture of the cheesecake I made for me hubby's birthday a few weeks ago. It was to die for and I'll have to make another one some day. This was the first cheesecake I've ever made and was extremely pleased with how it turned out. The chocolaty center and topping was something I decided to do halfway through the recipe and I think it really added to the overall flavor and presentation! I mixed some strongly brewed coffee in it to give it a little kick.

It was a pricey cheesecake! That's for sure. LOL I think ingredients alone it must have cost me about $30 for all the cream cheese, eggs, graham crackers etc. Of course it was all organic, so that adds to the costs.


Here's a picture of what I have been working on outside. Unfortunately the one flower is in between a blooming, but you get the idea! I completely cleared out the area because it was full of weeds and really tall grass. Thankfully there is no poison ivy around this tree.


These are my neighbors blackberries, but they hang over into our yard. I don't think they are missing them. =p They taste absolutely delicious, but they will be all gone from the birds very soon! The robins have been picking at them quite a bit.

The other tree has so much poison ivy around it, that it actually LOOKS like it is PART of the tree! This is the type of poison ivy that gets people because it has woody vines and hangs down like the other tree's leaves. I'm not sure if anyone else has noticed a huge increase in poison ivy or not. However it just seems like I am finding new sprigs of it EVERYWHERE!


I've never had poison ivy before, but I'm not about to go walking around that tree!

Wednesday, June 24, 2009

I Lived Through It!

This water deprivation was much harder than the last one. I woke up at 5AM so thirsty and I couldn't do a darn thing about it. The crazy thing is that I had to wake up and pee too. Wow! I was 7 hours into the deprivation and my body was still urinating during the night. That's pretty crazy.

I was awake from 5am to about 8am. I literally just laid in bed, sweating and just hoping that this would be over. Then eventually I fell asleep and woke up around 10AM. I felt so lifeless this morning. My mouth was tacky and I cracked my lip really bad during the night. It was bleeding. My left arm started to cramp up really bad. My fingers wanted to curl and my forearm was on fire!

We got to the lab and they were closed...LOL so we had to go to another lab about 30 minutes away. /sigh I told the lady to get the blood out of me now, so I can drink some water. She knew what was up and before she looked at the tubes said, "oh you are getting ADH checked?" I was impressed to be honest and she's drawn my blood before in the labcorp near my house.

My urine was fairly dark when I collected it this morning. That's a good sign that my body does concentrate urine somewhat. I know that I don't have severe, complete DI or I wouldn't even been able to go 3 hours without water. People with complete DI usually can't go more than 2 hours before their vitals get so weak that they are at serious risk of going into shock from fluid loss.

I am very curious to see what the results are from these tests. We did a BMP to check sodium, BUN, and potassium. Sodium is supposed to be higher when you are dehydrated and now that I'm taking florinef I wonder if my body is responding appropriately now. We also checked blood osmolality to see how thick my blood was getting. This tells you exactly how dehydrated the body is at that very moment. Anything above 295 means that you are maximum conservation mode. Lastly we checked serum ADH. This test isn't always that accurate, but I did it just to see how it compares to my numbers from the test in '08. The urine osmolality will tell me just about everything I need to know, but you have to compare it to the serum osmolality and sodium levels in the blood. You can't just look at 1 thing.

I will definitely post my lab results when I get them back. It will probably be 2 weeks because I know they have to send out the ADH to another lab.

Tuesday, June 23, 2009

Beginning Water Deprivation at 10:30PM...Gulp

I am starting my 12 hour water deprivation, so I can get my lab work done tomorrow. I am doing this again, so that I can see exactly what my body is doing now that I am on Florinef. I haven't taken my DDAVP for about 3 months! This water deprivation is going to be hell. Let me tell you. I thought tonight would be a good night to do this because it was fairly warm today (80 degrees) and I was sweating, peeing and drinking a lot. If my body can't conserve water in 80 degree weather then something is very wrong.

I'm already nervous about it because I am very very thirsty and have been all day long. I haven't kept up with my thirst as much as I should have, but that's what happens when you are working around the house.

If I start to feel really sick I will just quit. It isn't worth risking my life for some stupid numbers on a lab. However I will try my hardest to get through the night. I probably won't be sleeping much and when I usually can't sleep it's from the extreme thirst. I won't be able to reach for that water next to the bed to calm my body down...

Wish me luck because I'm going to need it tonight.

Saturday, June 20, 2009

Tinea Versicolor Flare Up

The first time I had tinea versicolor it was on my chest many years ago, but never knew what it was. It was one of those things that I "lived with". Then one day my husband was like you should find out what is on your chest because it's getting worse.

So I sucked it up and went to my primary care doctor many years ago and he said it was the fungus, tinea versicolor. I put the cream on my chest for a week or something and it slowly faded away. Unfortunately it would come back over the years and I found out that Nizoral shampoo works just as good as the stuff they give you at the docs, so I just started to self-treat.

Well just a few days ago I noticed a few spots on my chest. Then this morning I woke up and my husband goes...wow your tinea versicolor exploded overnight. You had a few spots on your neck yesterday I forgot to tell you about, but now it's all over... I thought he was exaggerating just a tad, so he took a picture.

I look like a brontosaurus.

I hate you Night Sweats

Seriously I went back and looked at my blog's history at all the posts where I complain about night sweats and it's truly unbelievable. Why do I experience these all the darn time?

They have been coming and going again. Now that I'm on florinef, I have to assume it's NOT low aldosterone but looking back a few months ago I was experiencing night sweats when I was taking my DDAVP too. It is not normal to be drenched in sweat at night. Maybe once or twice a year, but not on a regular basis.

I made a post about this on the NTH adrenal yahoo group and a lot of people have them, but no one seems to know what causes them. haha I guess there's a group of us out there that deal with this annoying sleeping interruption.

Now for some exciting news. I am doing another modified water deprivation test to see how my body is concentrating urine now that I'm on florinef. My new doc said that he'd be willing to order the labs for me since all I have to do is just not drink water for 12 hours or so. A true water deprivation test is really involved and would involve a trip to a pituitary endo. Honestly I can't handle the hassle of going to a mainstream doc and will settle for this modified (slightly dangerous) water deprivation test. LOL If I get really sick, then I'll call it off. Don't worry!

I'll be weighing myself each hour to see what happens sort of like what they do with the real test. Obviously I won't be able to test my urine osmolality, but I have strips that do specific gravity which can give me a clue. If it's really low, then I know the osmolality is low too. Unfortunately high specific gravity readings can be largely inaccurate.

Just a little while ago, I had this terrible sharp pain in my abdomen and I felt very nauseous. It came out of no where, so I took some extra HC and bile salts. Thankfully one of those fixed the pain I was having, but I'll never know which one exactly.

That is all for now. I'm not taking the armour until my sleep is better, so we will see when that happens. I feel really tired right now and think it's about time to sleep. I just hope I can sleep throughout the night without too much interruption.

Thursday, June 18, 2009

Armour Not Going Well

Unfortunately adding in the armour is NOT going well at all. The insomnia is out of control. Today I was told by my doctor not to take any to see if my heart rate calms down a little. Just a moment ago I took my blood pressure and it was 124/76 with a HR of 119! This was upon standing so it is NOT salt wasting as my blood pressure went up rather than down. Obviously the armour has made me go "hyper" or I'm pooling the hormone in my blood. Regardless, this is the worst I have felt since starting the hormone replacement. I just can't take this dark depression I've been in for the past week and nothing I do snaps me out of it.

I have absolutely no motivation to do anything and would have no problems just staring at the wall for hours on end. That is one hell of a drastic change from me just 2 weeks ago where I was feeling fantastic.

Tonight I am curious to see how I feel and if I can even sleep. If I can sleep, I think that alone will help my mood lift.

Thursday, June 11, 2009

Eyes Seem Bad Today

For whatever reason my eyes seem pretty bad tonight. Lots of lights in both eyes and my floaters are driving me absolutely insane. GRRR! Sadly I know things will only get worse for me as time goes on, so I have to learn to live with this.

I completely forgot to post a picture of that burn I had a couple weeks ago, but now I can't find the camera it's on! It's actually healing a lot faster than I imagined, so that is good.

The armour is going OK. My temps have been running a little high, so I'm not sure what to think yet. I don't feel hyper at all, so I'm just going to keep taking it to see what happens!

If the weather cooperates tomorrow (and I can find the camera) I'm going to show you all what I worked on this past week.

Tuesday, June 9, 2009

Started On Armour Today

I asked my doc if I could go ahead and start Armour a little early since the DHEA isn't causing me any problems and he said sure.

Today I started on 1 grain of Armour. I split the dose of 1/2 in the morn and then another 1/2 at lunch time. I definitely felt a little different today, but I can't say whether it was a good or bad different. My temps were actually running a little high and I needed to stress dose the HC (2.5mg) which calmed me rather quickly.

It's also a pretty hot day here (well in the house at least), so I've been watching my salt-wasting symptoms and trying to remember to drink water. I took a 1/4 tab extra of Florinef today once I realized that it was going to be about 86 degrees in the house. Right now it says 85 and we've had fans running all day to get air circulating through.

I know most people will say that starting on 1 grain of Armour all at once is not right. I looked into this and saw that most people recommend 1/4 to 1/2 grain to start. I asked my doc about this and he said that he thinks that would actually make me feel worse. Sort of like when you only take 10mg of HC, it shuts down the ACTH feedback loop and you feel worse off than if you hadn't taken any. I'm keeping an eye on my temps which are definitely higher today, but it's also really hot the house too.

So far I feel pretty decent considering it's hot outside and I started the Armour. I had 2 things hit me today! haha

In 2 weeks I increase it by another 1/2 grain up to 2 grains total.

PS-- I think I got the old Armour formulation, which seems to be dissolving without any trouble. It looks like my hubby got the new formation, which he said tastes like butt. LOL

Sunday, June 7, 2009

Got my hair cut!

I got my hair cut and it's fantastic! I had about 5 inches cut off the end and went ahead with a side sweeping bang. I haven't had bangs for at least 15 years. When she cut it, the inner voice in me went---"Oh goodness what have YOU done!"---, but it looks so young, trendy and I love how it hangs
in my face. I know that sounds really strange, but I like having those pieces fall around the face. It helps to frame my face which is good.

I can now wear my hair up and can hide the final bald spot with the bangs!

With my new hair style, I needed a flat iron to keep the bangs from trying to flip out strange. I have a very slight wave in my hair, which normally I don't mind. However with the bangs, I need to get it as straight as possible so it doesn't stick out weird.

I have one coming in the mail and should be here in a few days! I'm so excited!

Friday, June 5, 2009

Findings at the Eye Doc's

Today I had my next appointment and things are OK. It appears that the "White without pressure" is in fact in BOTH eyes. I saw a different doc this time, so I've now had 4 people look at my eyes.

This doc said that I have way more floaters in my right eye than my left. I told him that I thought I had a few more but couldn't tell which eye it was in. Thinking that only left eye was an issue, I told him I just assumed it was my left eye. Well all of that goes out the window now. He said the peripheral retina thinning in my left eye is much more advanced than in my right eye, but he said he thinks I'm probably seeing lights in both eyes. Oh great!

He told me to avoid any heavy lifting and to pay more attention to the lights, when it happens and which eye it is in. Now that I know it could be either eye, I'm trying harder to figure it out. I told him the heaviest thing I lift is probably doing the dishes, which he was very happy to hear. He said that I do not need to be putting anymore strain on the eyes and that lifting something heavy could cause the vitreous to pull away from the eye...FUN!

I think I've had this problem for a long time now, but this is the first real eye exam I've had in about 15 years...lol Who knows long this has been going on for!?

That's about it. I have another appointment in 4 months, but if anything comes up I should immediately call. This definitely makes me feel a little better because it hasn't gotten any worse in a week's time. I am a little concerned about the long term though. I am certainly too young for the vitreous to detach/tear. This is something that isn't supposed to happen until you are in your 60's-70's.

Thursday, June 4, 2009

Some Blood Work

Here's some blood work I had done. It came back the day I went to the eye doctor, so I haven't been thinking about it much. hehe

I started on 12.5mg of DHEA yesterday on the advice of my doc. Then after 2 weeks take 1/2 tab twice daily.

Electrolyte Panel
Sodium 141 (135-145) Good
Potassium 4.0 (3.5-5.2) Pretty decent
Chloride 104 (97-108)
Carbon Dioxide 24 (20-32)

FT4 1.25 (0.61-1.76) Doc says the range should be 1.0-1.76
FT3 3.4 (2.3-4.2) Mid-range
TSH 2.095 (0.450-4.500) Little high
DHEA-S 24 (65-380) WoW!!

With these thyroid labs, my doc wants me to start on Armour in 2 weeks once I get the DHEA up to 25mg daily. He doesn't want to change 2 things at once, which makes sense.

Something weird that has come up out of no where is this strange pain near my right rib cage. It actually woke me up yesterday morning and was excruciating for about 15 seconds. Then it faded some--thankfully. It MIGHT be a pulled muscle, but I'm going to give it some time to see what happens. I have been doing some painting in the house, so it's definitely possible. heh I don't know why my muscles are so weak if that's the case.

Tonight my eye is not good. Very strange with lights near my peripheral vision, but I'm going to hang in there unless a shower of floaters come up out of no where. If that's the case I'll be calling the emergency number.